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Research Funding Strategy


In 2014, the National Niemann-Pick Disease Foundation Board reviewed its research funding strategy and has produced a new strategic plan for research.

Account was taken of the needs of our Membership; current knowledge in the field of Niemann-Pick Disease; the funding strategies of other NPD organizations; and the advice and expertise of the members of the NNPDF's Scientific Advisory Board.

As a result we are pleased to announce that the NNPDF will fund Pre-Doctoral, Post-Doctoral and Early career investigator fellowships in all areas of promise - basic, translational and clinical research- with regards to Niemann Pick Disease.

The NNPDF strives to enable promising new researchers to make a career in the field of Niemann-Pick Disease, thus providing for a new generation of scientists to accelerate the pace of NPD research.

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Our current level of funding enables us to fund research fellowships to improve the understanding of the biology and pathogenesis of Niemann-Pick Disease Type C (Peter G. Pentchev Fellowship).  Please Note: A call for Edward H. Schuchman - Acid Sphingomyelinase Deficiency (ASMD; i.e. Types A and B Niemann-Pick Disease) fellowship applications is not available for 2015.

Thanks to the hard work of our member families raising money in their communities, and the generosity of many individual and corporate donors, the NNPDF has directed over $5.2 million to Niemann-Pick Disease research since 1992.

The NNPDF Board is determined to ensure that research funds are well spent and to provide funding that is most likely to accelerate finding an effective therapy or cure for all types of Niemann-Pick Disease.

The Canadian Chapter of the National Niemann-Pick Disease Foundation (CCNNPDF) is a sister chapter to the National Niemann-Pick Disease Foundation (NNPDF) (U.S.) and receives administrative support from the NNPDF. Money raised through the CCNNPDF is invested in Niemann-Pick Disease research through the NNPDF's research program with guidance from the NNPDF's Scientific Advisory Board (SAB), Board of Directors, and Research Committee. This partnership helps eliminate redundancy and maximizes the impact of research dollars. (Tammy Vaughan, chair of the CCNNPDF, serves as secretary of the NNPDF, and is on the NNPDF's Research Committee.)


Application Process ~ Peter G. Pentchev Fellowship

Research Fellowship for the Study of NPC
 


Application Process ~ Edward H. Schuchman Fellowship

The call for Edward H. Schuchman fellowship applications is not available for 2015.

Research Fellowship for the Study of ASMD
(Types A and B Niemann-Pick Disease)

 


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“The Canadian Chapter of the National Niemann-Pick Disease Foundation (CCNNPDF) does not engage in the practice of medicine. It is not a medical authority nor does it claim to have medical knowledge. This site is an educational service of the Canadian Chapter of the National Niemann-Pick Disease Foundation and is not meant to provide diagnostic or treatment advice. Information contained or suggested on this Web site does not constitute medical advice. For all information related to care, medication or treatment, the CCNNPDF recommends consulting a physician to determine if information presented is applicable. Please review these additional cautions about medical information provided on the Internet.”

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The Canadian Chapter of the National Niemann-Pick Disease Foundation is a registered charitable organization.  Your donations are fully tax-deductible.