The Canadian Chapter of the National Niemann-Pick Disease Foundation (CCNNPDF) is voluntary, nonprofit organization made up of parents, medical and educational professionals, friends, relatives, and others who are interested in fighting Niemann-Pick disease.
The Canadian Chapter of the National Niemann-Pick Disease Foundation was founded in April 2005, and in January 2006, the Canadian government recognized the CCNNPDF as a registered charity.
The primary goals of the foundation are:
- To promote medical research into the cause of Niemann-Pick Disease and to find a cure
- To provide medical and educational information to assist in the correct diagnosis and referral of children with Niemann-Pick Disease
- To provide support to families of Niemann-Pick Disease patients
- To encourage the sharing of research information among researchers
The CCNNPDF is a sister chapter to the National Niemann-Pick Disease Foundation (NNPDF) (U.S.) and receives administrative support from the NNPDF.
[June 28, 2010 mem]