Join the CCNNPDF Membership
The Canadian Chapter of the National Niemann-Pick Disease Foundation (CCNNPDF) is a sister chapter to the National Niemann-Pick Disease Foundation (NNPDF) in the United States, and the two chapters collaborate extensively in various facets of operation. This cooperative relationship maximizes use of resources while minimizing duplication of efforts and services, and ensures that donors’ generous gifts are faithfully stewarded to bring the greatest benefit to families dealing with NPD.
The National Niemann-Pick Disease Foundation (NNPDF) is the MAIN line of communication between clinical trial updates and our Foundation Membership. It is critical that the NNPDF Central Office have your updated contact information.
We are asking ALL NNPDF members to fill out an online membership form. Even if you have done this before ~ people move, email addresses change and the NNPDF Staff wants to be sure that you are receiving all of our communications.
A member is defined as a person or family concerned with the mission and vision of the Foundation. Membership is conferred upon submission, full execution, and acceptance of an application for membership in the Foundation.
Membership is free and it enables us to better support and provide our families with the latest clinical trial updates and news as they become available to us. This includes:
Please go to our Online Membership Form and submit your information today!
- Monthly e-Newsletters sent via e-mail
- Clinical Trial updates as they become available via e-mail/mail/social medias
- Yearly hard copy Newsletter sent by mail
- New member welcome packet with a wealth of information on Niemann-Pick Disease
If you have any questions please email Chris Klauer, Family Services & Marketing Coordinator at firstname.lastname@example.org or call her at 877-287-3672.
Prefer to Mail in Your Membership Form?
Membership Form for Niemann-Pick Disease Family Members & Patients
Membership Form for Niemann-Pick Disease Extended Family, Friends and Community
National Niemann-Pick Disease Foundation (NNPDF)
P.O. Box 49
401 Madison Avenue, Suite B
Fort Atkinson, WI 53538-0049
Toll Free: 1-877-287-3672
Fax : 1-920-563-0931
Please send contributions to:
The Canadian Chapter of the National Niemann-Pick Disease
c/o Tammy Vaughan, Chair
P.O. Box 302
Durham Ontario N0G 1R0
Or donate online using your credit card -- an easy and secure way to donate: Contribute to CCNNPDF online
Let Us Hear From You!
This Web site has been developed to
be a supportive and educational tool for individuals interested in learning
more about Niemann-Pick Disease (NPD), and for those who have a loved one
or family member diagnosed with NPD. We appreciate and welcome your feedback! Please
let us know how we can best serve you by contacting
our NNPDF Central Offices with your comments at: email@example.com.
you for your time and consideration.
[06/03/2015 ~ blg]