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The CCNNPDF Board of Directors

Mailing Address:

CCNNPDF
c/o Tammy Vaughan, Chair
P.O. Box 302
Durham, Ontario
N0G 1R0

2015 CCNNPDF Board of Directors, and Committee Members (from left): Front row - Ashraf Ghadban, Adam Vaughan 
Second row - Sandra Cowie, Tammy Vaughan, Monica Patenaude-Taillefer, Bobbi Voisin. Not pictured: Lucy Liegghio, Margaret Mackrell, Valerie Holliday, Rhonda Lantz, Julian Rayman, Dean Zilio.







Tammy Vaughan, Chair

Tammy is a Director of Procurement and Production Planning at a processing plant in Hanover, Ontario.  Besides being chair of the CCNNPDF, Tammy also serves as a Director-at-Large on the NNPDF Board and sits on the Research and Nominations Committees.  Tammy and her husband Allan are the proud parents of Michael and his wife Marianne, as well as, their angels Alex who passed away from NPC  at age 4 and Laura who passed away from NPC at age 6.  It is Tammy and Allan’s life’s work to do all they can to help all who are affected with Niemann-Pick Disease.

 

tammyV@butterball.ca 

Alex Laura

Lucy Marie Liegghio, Vice Chair

Legal Assistant and Trainer at the law firm of Cavalluzzo Hayes Shilton McIntyre & Cornish. Founded the Life for Luke Foundation with her husband, Enio Liegghio. Lucy currently serves as the Vice-Chair of the CCNNPDF. Highest title of all however, is being mother of Vanessa and her brother Luke who lost his battle with NPC on June 10, 2005, at the age of 8.

casaliegghio@sympatico.ca


Margaret Mackrell, Treasurer

Margaret is a registered nurse who has specialized in pediatric nursing and clinical trials at The Hospital for Sick Children and Mount Sinai Hospital, Toronto, Canada. She has worked as a Research Coordinator in the Division of Metabolic and Clinical Genetics with Dr. Joe TR Clarke since 1999.

margaret.mackrell@sickkids.ca

 


Sandy

Sandra Cowie, Director-at-Large
(NPB Adult Patient)

Sandra has been with the Canadian Chapter foundation since 2008, bringing not only her background in healthcare, but a keen patient perspective as a Niemann-Pick Disease Type B patient.

She current serves on the Research Committee of the NNPDF and most recently left the post as Research Committee Chair.  Sandy works very closely with both the members of the NNPDF Scientific Advisory Board, as well as with current, potential and previously funded research Fellows.

Sandra currently lives in Ontario, Canada

slcowie@rogers.com

 

Ashraf Ghadban, Director-at-Large

Ashraf serves on the CCNNPDF Board in Honor of his son, Kareem (NPB).


aghadban@yahoo.com

 

Valerie Holliday, Director-at-Large

valerie@cogeco.ca

 

 

Rhonda Lantz , Director-at-Large

Rhonda became involved with The CCNNPDF when her good friends, Allan and Tammy Vaughan, decided they wanted to make sure no other family experienced the anguish they did, losing two children to Neiman-Pick disease, without knowing that there was funding and support for research and education for families.  Rhonda has a background in social services. In addition to this volunteer work, she also facilitates youth justice circles and will be in radio communications at the 2015 Pan Am games in Toronto this year.

rhondalantz@persona.ca

 

Heather Patenaude Taillefer, Director-at-Large

Heather was introduced to the foundation after her first-born daughter Monica was diagnosed with Niemann-Pick Type C just shy of turning three months of age. Even though Monica lost her courageous battle in May of 2012 her legacy and impact in this world continues on through those she touched. Monica transformed Heather's outlook and encourages her live her life in the moment and see the beauty all around her. Heather is a stay-at-home mom to Monica's baby sister Bella, who was born in 2013. Heather wants to bring awareness to NPD and help other families, all in her honor of her precious princess Monica.

heatherpat83@hotmail.com



Dr. Julian Raiman, Director-at-Large

Dr. Raiman is currently the lead clinician for Lysosomal Storage Disease patients in the Division of Clinical and Metabolic Genetics at the Hospital for Sick Children in Toronto.  In addition, he is a project investigator collaborating on a variety of ongoing trials including being the site investigator for the NIH Lysosomal Diseases Network.  He also sits on the North American Board for the Hunter Outcome survey and the Medical Advisory Board of the CCNNPDF, as well as the Canadian Society for MPS and Allied Diseases.   Dr. Raiman received his paediatric training in the UK and Australia, with his metabolic training having been completed in Toronto.

julian.raiman@sickkids.ca

 

Adam Vaughan, Director-at-Large

Adam currently serves as a director-at-large on the CCNNPDF board .

adamv@sfu.ca

 

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Bobbi Voisin, Director-at-Large

Bobbi is a business graduate from Wilfrid Laurier University in Waterloo, Ontario. Bobbi is employed at a manufacturing plant in Hanover, Ontario where she was introduced to Niemann-Pick Disease through her co-worker, Tammy Vaughan.

voisin6260@gmail.com

 

Dean Zilio, Director-at-Large

Dean has known Tammy Vaughan, CCNNPDF Board Chair, for 20+ years and has been involved with the Foundation for over 5 years. He lives in Kithchener,Ontario with his wife Janet and their two daughters, Michelle and Becca.

dzilio0563@rogers.com

 

Updated: 05/1/2015 ~ blg