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CCNNPDF Newsletters

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Nov
*NEW*

- INPDA Meeting
- "Think again. Think NPC"
- 2015 Global October Awareness
- National Family Caregiver Month
- Giving Tuesday 2015
- PersevereWear
- Clinical Trial Recruitment
Reminder from Chris Klauer

 



- The 23rd Annual NNPDF Conference

- Message from the NNPDF Board

- APMRF Annual Conference

- CCNNPDF Membership

- INPDA New Website

- Clinical Trial Updates



May

-Think Again. Think NPC. CANADA!
- The 23rd Annual NNPDF Family Conference
- Research Progress Reports
- Clinical Trial News and Updates
 - CCNNPDF Membership ~ Action Required 
- CCNNPDF Fundraising
- Meet the CCNNPDF Members of the Board

 

E-Newsletters

Niemann-Pick News header

 


*NEW*

- Give the "Gift of Hope"
- iGive.com
  - Goodshop
- Amazon Smile
- Bravelets & Awareness Beads
- Persevere Wristbands
- PersevereWEAR

Nov

- INPDA Meeting
- 2015 Global October Awareness
- National Family Caregiver Month
- Giving Tuesday 2015
- PersevereWear
- Clinical Trial Recruitment
  - Reminder from Chris Klauer

Oct

- Global October Awareness Month
- 2015 Family Conference Recap
- Clinical Trials: Updates and Recruitments
- NNPDF Fellowship Progress Reports

 

Sept

- 2015 Family Conference Recap
- Research and Clinical Trial Updates
- Global October Awareness Month
- Reminder from Chris Klauer



Aug

- 2015 Family Conference Recap
- Equipment Exchange Update
- Research & Clinical Trial Updates
- Reminder from the Family Services and Marketing Coordinator

Jul15

- 2015 Family Conference
- Equipment Exchange Update
- Research & Clinical Trial Updates
- Reminder from the Family Services and Marketing Coordinator

June15

- 2015 Family Conference
- NNPDF Board Communication Page
- APMRF Conference
- NNPDF Membership Registration
- INPDA New Website
- Clinical Trial Updates


May15

- 2015 Family Conference
- NNPDF Board Communication Page
- NNPDF Online Membership Form
- NNPDF Fellowship Progress Reports
- Fundraising Season

Apr15

- Family Conference 2015
- New NNPDF BOD & Staff
- Request for Fellowship Applications
- Clinical Trial Updates
- Equipment Exchange

Mar15

- Family Conference 2015
- $100,000 Won for NPC
- World Rare Disease Day
- 2015 NNPDF Board Meeting

Feb15

- World Rare Disease Day
- WORLD Symposium
- Compassionate Use
- Medicare Transaction
- Coaches Charity Challenge
- 2015 Annual Board Meeting

Jan15

- Vtesse Announcement
- Clinical Trial Updates
- Coaches Charity Challenge
- 2015 Annual Board Meeting

Dec14

- Giving the Gift of Hope
- iGive
  - Goodshop
  - Amazon
- Bravelets & Beads
- Persevere Wristbands

Nov14

- Giving "Tree" Tuesday
- Expression of Hope
- National Caregiver Month
- NPC vs. Ebola

oct14

- October Awareness Month ~ Research
- Persevere Award
- NNPDF Tributes
- 2014 Fellowships
- Genzyme PAL Award
- October 2014 Recap

Sept14

- October Awareness Month
- Think Again. Think NPC.
- Equipment Exchange
- Family Voices
- Clinical Trial Updates
- Board Membership Call
- Family Conference Photo

Aug14

- Family Conference Experience
- 2014 FC Recap & Memorial

July14

- 2014 Family Conference
- Getting Around
- Things to Do
- Alcatraz Island Tour

Jun14

- Family Conference 2014
- 2014 Summer Fundraising
- NNPDF Newsline

Mat14

- 2014 FC Registration
- Welcome to Lee Ann Keener
- Research Updates
- Rare Disease Reseach

Apr14

 - 2014 Family Conference
- Request for Fellowship Applications
- Research Updates
- 2014 New SAB Chair

March14

- 2014 SAB
- Request for Fellowship Applications
- Research Updates
- Rare Caregivers Site
- 2014 Family Conference

Feb14

- Rare Disease Day
- Request for Fellowship Applications
- Clinical Trial Updates
- 2014 Family Conference

Dec13

- Gift of Hope in 2014
- Caring for the Caregiver
  - Legacy of Hope
- In Memoriam

Nov13

- Giving the Gift of Hope
- iGive
- Goodshop
- Amazon
- Persevere Wristbands
- Bravelets & Beads
- Willow Wicks
- PersevereWEAR

Oct13

- October Awareness Month
- Recipes for Success
- Pandora-Like Bead
- PersevereWEAR
- Persevere Wristbands
- Fundraising Events
- 1-2-3 Awareness

Jun13

- 2013 Family Conference
- 2013 Fundraising Season
- Clinical Trial Updates

Mar13

- 2013 Family Conference
- NIH Cyclodextrin Clinical Trial for NPC
- NPD ASMD Updates
- NNPDF Welcomes 2013 SAB Members
- 2013 World Rare Disease Day
- NNPDF Welcomes New Staff
- NNPDF Annual Board Meeting

Dec12

- 2012 Holiday Greetings
2012 Family Conference
- NNPDF Clinical Trial Updates

July2012

- NNPDF 20 Year Anniversary
- 2012 Family Conference
- 2012 Summer Fundraising
- Research Applications Under Review

March12

- 2012 Family Conference Dates
- Fellowship Request for Applications
- Blood Draws for NPC
- NNPDF 20th Anniversary

Dec2011

- Warm Wishes from the NNPDF
- 2012 Upcoming Events
- ASMD Clinical Trial Update

Oct2011

- October Awareness Month
- Research Fellowship Updates
- 11-11-11 Challenge
- 2011 Family Conference Recap

April2011

- 2011 Family Conference
- Cyclodextrin Clinical Trial
- Research Projects Updates
- HDACi Studied for NPC
- 2011 Fellowships ~ RFA
- NNPDF SAB Member Update

March2011

- 2011 Annual Board Meeting Recap
- Research Updates
- Pentchev Fellowship RFA
- World Rare Disease Day
 

Dec2010

- Holiday Greetings from the NNPDF

 

 

NEWSLETTERS

NNPDF Direct Mail Campaigns to our Supportive and Generous Contributors

E-Newsletters

Newsletters of the Niemann-Pick Disease Group (United Kingdom)

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[Updated May 19th, 2015 blg]