The Canadian Chapter of the National Niemann-Pick Disease Foundation supports and promotes research
to find treatments and a cure for all types of Niemann-Pick Disease, and
we provide support services for individuals and families affected by NPD.
Our
Vision
...is a world where Niemann-Pick Disease is no longer a threat
to a full and productive life for patients and their families.
The CCNNPDF is currently in attendance at this groundbreaking conference and is updating as research presentations are happening! Visit the WORLD Symposium page for all the latest research abstracts from the NPC & ASMD presentations! |
Important Message from the NNPDF Board of Director's
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Think Again, Think NPC Campaign
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Here for you Always
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The Canadian Chapter of the National Niemann-Pick Disease Foundation was established in April 2005.
The primary goals of the foundation are:
- To promote medical research into the cause of Niemann-Pick Disease and to find a cure
- To provide medical and educational information to assist in the correct diagnosis and referral of those with Niemann-Pick Disease
- To provide support to families of Niemann-Pick Disease patients
- To encourage the sharing of research information among researchers
Our Web site can
help you learn more about
Niemann-Pick Disease
. The
NewsLine
,
Research
, and
Media
pages
are resources for the latest in NPD news. Meet our board of directors in the
About Us
section.
Click
here
to read an introductory
letter from Tammy Vaughan, Chair of the Canadian Chapter of the National
Niemann- Pick Disease Foundation. Feel free to send
us an email as we enjoy getting feedback from our visitors. In the
Events
section you'll find write-ups and photos from our fundraising events. For donation information,
please visit the
Donate Now
page.
Thank you for visiting the CCNNPDF Web site, and please let us know if we can be of any assistance!
Foundation News:
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Research News & Announcements:
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Family Resources & Support:
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The Progression of NPC in Two Children's Lives
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Adam Ward, NPC
1/13/90 - 6/4/00 |
Stacey Vorpahl, NPC
1/3/85 - 10/9/04 |
National Niemann-Pick Disease Foundation (NNPDF)(U.S.)
The CCNNPDF works with the NNPDF to promote research, provide education, information and referrals, and to support families who have received a diagnosis of Niemann-Pick Disease. For more information visit www.nnpdf.org
Mia Walts, NPA
5/31/09 - 10/29/11
"The Canadian Chapter of the National Niemann-Pick Disease Foundation (CCNNPDF) does not engage in the practice of medicine.. It is not a medical authority nor does it claim to have medical knowledge. This site is an educational service of the Canadian Chapter of the National Niemann-Pick Disease Foundation and is not meant to provide diagnostic or treatment advice. Information contained or suggested on this Web site does not constitute medical advice. For all information related to care, medication or treatment, the CCNNPDF recommends consulting a physician to determine if information presented is applicable. Please review these additional cautions about medical information provided on the Internet.”
This site does not host or receive funding from advertising or from the display of commercial content.
The Canadian Chapter of the National Niemann-Pick Disease Foundation is a registered charitable organization. Your donations are fully tax-deductible .
Web Site updated 02/12/2015 ~ blg |
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