Press Releases
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FDA Issues "Complete Response" Letter with Regard to Zavesca (miglustat) for NPC in the U.S.
3/15/10
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Barb Vorpahl Testifies to FDA Advisory Committee on Use of Zavesca (miglustat) for NPC
3/1/10
- NNPDF Board of Directors Hold 2010 Annual Meeting Group Photo 2/25/10
- NNPDF Co-Hosts First International Meeting of Non-Profit Niemann-Pick Disease Organizations 11/18/09
- Quandts of Edgewood, Washington, attend First International Meeting of NPD Organizations 11/18/09
- Wisconsin Governor Proclaims October 2009 as Niemann-Pick Disease Awareness Month 10/13/09
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Edmonton, Alberta, Canada Mayor Proclaims October 2009 Niemann-Pick Disease Awareness Month
10/1/09
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Hair Cut-a-Thon to Benefit NNPDF
9/29/09
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Brubaker Family Plans Multiple Events to Raise Funds for NNPDF
9/28/09
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Dubuque, Iowa Mayor Proclaims October 2009 as Niemann-Pick Disease Awareness Month
9/28/09
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Hunter's Hope Golf Tournament to Raise Funds for Research and Family Support Services
8/10/09
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Golf FORE Stacey 2009 -- Raising Funds for Research and Family Support Services
6/16/09
- NNPDF Board of Directors Hold 2009 Annual Meeting 3/5/09
