NNPDF Awareness Items
NNPDF Awareness Products
Available
Great fundraising
items or thank you gifts for volunteers!
Click a photo below to go directly to the product.
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PersevereWEAR
Quick link here for Website to order product
The popular PersevereWEAR has returned in more colors and styles than before! These are the shirts available at the 2013 Family Conference in Baltimore, so if you didn't get yours before supplies ran out, now is your chance!
Visit the PersevereWEAR Store online to order yours.
Persevere For Life Wristbands
Quick link here to the Persevere Wristband Order Form
Don't leave home without your periwinkle PERSEVERE wristbands to show your support for those with Niemann-Pick Disease! These are updated for 2013 with "Persevere for Life" written along the band. These wristbands are great for fundraisers and as gifts for friends and family alike. Adult and Youth sizes available!
Niemann-Pick Disease Awareness Posters
Quick link here to Poster Order Form
The NNPDF Awareness Posters are a great way to create Awareness at your event, school or place of employment.
Persevere Window Decals
Quick Link here for website to order product
Persevere Window Decals are produced by a good friend of the NNPDF - sales benefit the foundation. Visit Etsy shop - Victory Decals to order. Decal application tips (pdf)
Willow Wick Candles
Lisa Chavez of New Mexico and Mom to Breann (who passed away in 2006 at age 3 from NPC), hand-crafts the special PERSEVERE candles to benefit the NNPDF.
In time for the holidays, she has come out with a new PERSEVERE line of products including both candles and lotion! For those who have had the opportunity to attend our annual conferences and are welcomed into the large conference session rooms by the warm, beautiful scented candles ~ these candles have the same comforting scent ~ Butterfly Kisses.
Both the candles & lotion are scented with the NNPDF signature Butterfly Kisses scent (aka Creamsycle). Special sizes and prices for our NNPDF family membership are:
- 16 oz. tin candle $20.
- 8 oz. tin candle $12.
- 8 oz. lotion $10.
For NPD Willow Wick Candles and order form information please visit the Niemann-Pick Fundraiser Candles page . Note that this page will be updated shortly with new products.
Bravelets & Persevere BeadsClick here for quick link to purchase Bravelet
Click here for quick link to purchase Persevere Bead
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Looking for the perfect gift that doubles for NPD awareness? Becky McGuire, NNPDF Board Member and Cousin of Kelly Thompson (NPC), is offering NPD Awareness jewelry through Bravelets and a Persevere Bead for Pandora and similiar bracelets!
~Bravelets~
Bravelets™ bracelets are made to help you be brave during tough times. Wear it proudly for yourself or for a loved one!
- The women’s bracelet is made of 316L stainless steel and genuine leather.
- The men’s bracelet features dark brown bolo leather and smooth colored leather and the adjustable bracelet is made of braided cord and stainless steel.
Click a link below or above photo (Men/Women) to order your Bravelets!Women's Bravelet Men's Bravelet
Check out the NEW items from Bravelets!
Becky McGuire recently added more options to the NNPDF Bravelet catalog! Rings, necklaces & different variants on the Bravelet are now available!
As with the original Bravelet, for every piece of jewelry purchased, $10 will be donated to fight Niemann-Pick Disease!
~Persevere for Life Bead~
This beautiful keepsake is periwinkle blue, the color for NPD Awareness, and says "PERSEVERE FOR LIFE" along the side. It makes a great gift and even fits Pandora™ as well as similar bracelets.
Click Here , or the above photo for the order form
Proceeds benefit the National Niemann-Pick Disease Foundation
~Recipe for Success~
The National Niemann-Pick Disease Foundation Development Committee came up with these "Recipe for Success" cards to make planning a fundraiser fun and easy!
These cards were contributed to by NPD families who not only host these events, but have valuable experience in implementing the ideas presented on these Recipes for Success!
Each card includes:
- A fundraising idea/example
- The things needed for planning the event, or in this case, ingrediants
- A detailed description on how to make all your "ingrediants" combine to create a fundraiser
- Contact information in case you need additional help or have questions for people who have successfully held these fundraisers!
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How to get Sponsors, Raffle & Auction Items -
This card lists tried and true methods to get sponsors, raffle and auction items for your event.
Click Here to view the Recipe Card
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Awareness & Request Mailing -
This card lists tried and true methods to send out an Awareness Request Mailing.
Click Here to view the Recipe Card
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Garage Sale -
This card lists tried and true methods to host a Garage Sale fundraiser.
Click Here to view the Recipe Card, Page 1
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Home Party -
This card lists tried and true methods to host a Home Party fundraiser.
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Art Night -
This card lists tried and true methods to host an Art Night fundraiser.
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Bowling Tournament -
This card lists tried and true methods to host a Bowling Tournament fundraiser.
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Run/Walk Event -
This card lists tried and true methods to host a Run/Walk fundraiser.
Click Here to view the Recipe Card, Page 1
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Dance Party -
This card lists tried and true methods to host a Dance Party fundraiser.
Click Here to view the Recipe Card, Page 1
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Children's Carnival -
This card lists tried and true methods to host a Children's Carnival fundraiser.
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Golf Tournament -
This card lists tried and true methods to host a Golf Tournament fundraiser.
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Items provided by the Foundation are free of charge. However, a donation is requested to offset the cost of this service.
Items below marked with an ** are sold by third parties with proceeds benefitting the NNPDF. Sales tax and/or shipping and handling charges may apply.
(For items marked **, order directly from the third party listed)
Item Order Form |
Recommended Donation |
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Persevere Shirts and Outerwear **
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Order from Web site |
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Persevere Bracelets
-- Adult size or Youth size available
Periwinkle blue rubber bracelet |
$1 each |
| Posters (four designs) order form | $1 each |
| Persevere Decals | Order from Mandy's Etsy Store |
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Personalized Vinyl Banners
**
( click here for picture and order form ) |
2 ft. X 4 ft. banner with color NNPDF logo and one line of personalization for $35. Order from Laura Hrbacek . |
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NNPDF Newsletters
(most recent issue)
The latest news from NNPDF and member families |
Free |
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Videos
Ryan's Story, Learning about NPD, A Physician Talks About NPD |
$5 each - VHS or DVD |
All logos are copyrighted or are registered trademarks of the respective company.
The National Niemann-Pick Disease Foundation does not endorse or warrant these companies and products. This page is presented for informational purposes only.
[November 18th, 2013 ~ blg]