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NNPDF Awareness Items

NNPDF Awareness Products Available
Great fundraising items or thank you gifts for volunteers!

Click a photo below to go directly to the product.




PERSEVERE Window Decal




PersevereWEAR

Quick link here for Website to order product

The popular PersevereWEAR has returned in more colors and styles than before! These are the shirts available at the 2013 Family Conference in Baltimore, so if you didn't get yours before supplies ran out, now is your chance!

Visit the PersevereWEAR Store online to order yours.


Persevere For Life Wristbands

Quick link here to the Persevere Wristband Order Form

Don't leave home without your periwinkle PERSEVERE wristbands to show your support for those with Niemann-Pick Disease! These are updated for 2013 with "Persevere for Life" written along the band.  These wristbands are great for fundraisers and as gifts for friends and family alike. Adult and Youth sizes available!

NNPDF Product Order Form


Niemann-Pick Disease Awareness Posters

Quick link here to Poster Order Form

The NNPDF Awareness Posters are a great way to create Awareness at your event, school or place of employment.

NNPDF Poster Order Form .


Persevere Window Decals

Quick Link here for website to order product

Persevere Window Decals are produced by a good friend of the NNPDF - sales benefit the foundation.  Visit Etsy shop - Victory Decals to order. Decal application tips (pdf)


Willow Wick Candles


Lisa Chavez of New Mexico and Mom to Breann (who passed away in 2006 at age 3 from NPC), hand-crafts the special PERSEVERE candles to benefit the NNPDF.

In time for the holidays, she has come out with a new PERSEVERE line of products including both candles and lotion!  For those who have had the opportunity to attend our annual conferences and are welcomed into the large conference session rooms by the warm, beautiful scented candles ~ these candles have the same comforting scent ~ Butterfly Kisses.

Candle


Both the candles & lotion are scented with the NNPDF signature Butterfly Kisses scent (aka Creamsycle). Special sizes and prices for our NNPDF family membership are:

  • 16 oz. tin candle $20.
  • 8 oz. tin candle $12.
  • 8 oz. lotion $10.

For NPD Willow Wick Candles and order form information please visit the Niemann-Pick Fundraiser Candles page . Note that this page will be updated shortly with new products.



Bravelets & Persevere Beads

Click here for quick link to purchase Bravelet
Click here for quick link to purchase Persevere Bead

Looking for the perfect gift that doubles for NPD awareness?  Becky McGuire, NNPDF Board Member and Cousin of Kelly Thompson (NPC), is offering NPD Awareness jewelry through Bravelets and a Persevere Bead for Pandora and similiar bracelets!

~Bravelets~

Bravelets™ bracelets are made to help you be brave during tough times. Wear it proudly for yourself or for a loved one!

  • The women’s bracelet is made of 316L stainless steel and genuine leather.
  • The men’s bracelet features dark brown bolo leather and smooth colored leather and the adjustable bracelet is made of braided cord and stainless steel.

    Click a link below or above photo (Men/Women) to order your Bravelets!

Women's Bravelet Men's Bravelet

Check out the NEW items from Bravelets!

Braided

Becky McGuire recently added more options to the NNPDF Bravelet catalog!  Rings, necklaces & different variants on the Bravelet are now available!

As with the original Bravelet, for every piece of jewelry purchased, $10 will be donated to fight Niemann-Pick Disease!

~Persevere for Life Bead~

This beautiful keepsake is periwinkle blue, the color for NPD Awareness, and says "PERSEVERE FOR LIFE" along the side. It makes a great gift and even fits Pandora™ as well as similar bracelets.

Click Here , or the above photo for the order form

Proceeds benefit the National Niemann-Pick Disease Foundation



~Recipe for Success~

The National Niemann-Pick Disease Foundation Development Committee came up with these "Recipe for Success" cards to make planning a fundraiser fun and easy!

These cards were contributed to by NPD families who not only host these events, but have valuable experience in implementing the ideas presented on these Recipes for Success!

Each card includes:

How to get Sponsors, Raffle & Auction Items - This card lists tried and true methods to get sponsors, raffle and auction items for your event.

Contact Help:
NNPDF Main Office

Click Here to view the Recipe Card

Awareness & Request Mailing - This card lists tried and true methods to send out an Awareness Request Mailing.

Contact Help: NNPDF Main Office

Click Here to view the Recipe Card

Click Here to view the Awareness Donation Mailer


Garage Sale - This card lists tried and true methods to host a Garage Sale fundraiser.

Contact Help: Leslie Hughes

Click Here to view the Recipe Card, Page 1

Click Here to view Page 2


Home Party - This card lists tried and true methods to host a Home Party fundraiser.

Contact Help: Becky McGuire

Click Here to view the Recipe Card

Art Night - This card lists tried and true methods to host an Art Night fundraiser.

Contact Help: Lisa Chavez

Click Here to view the Recipe Card

Bowling Tournament - This card lists tried and true methods to host a Bowling Tournament fundraiser.

Contact Help : NNPDF Main Office

Click Here to view the Recipe Card

Run/Walk Event - This card lists tried and true methods to host a Run/Walk fundraiser.

Contact Help: Ryan Kelly

Click Here to view the Recipe Card, Page 1

Click here to view Page 2

Dance Party - This card lists tried and true methods to host a Dance Party fundraiser.

Contact Help: Karen Quandt

Click Here to view the Recipe Card, Page 1

Click Here to view Page 2

Children's Carnival - This card lists tried and true methods to host a Children's Carnival fundraiser.

Contact Help: Kathy Lane

Click Here to view the Recipe Card

Golf Tournament - This card lists tried and true methods to host a Golf Tournament fundraiser.

Contact Help: NNPDF Main Office

Click here to view the Recipe Card

Items provided by the Foundation are free of charge. However, a donation is requested to offset the cost of this service.

Items below marked with an ** are sold by third parties with proceeds benefitting the NNPDF. Sales tax and/or shipping and handling charges may apply.

(For items marked **, order directly from the third party listed)

Item Order Form

Recommended Donation

Persevere Shirts and Outerwear **

Order from Web site

Persevere Bracelets -- Adult size or Youth size available
Periwinkle blue rubber bracelet
$1 each
Posters (four designs) order form $1 each
Persevere Decals Order from Mandy's Etsy Store
Personalized Vinyl Banners **
( click here for picture and order form )
2 ft. X 4 ft. banner with color NNPDF logo and one line of personalization for $35.  Order from Laura Hrbacek .
NNPDF Newsletters (most recent issue)
The latest news from NNPDF and member families
Free
Videos
Ryan's Story, Learning about NPD, A Physician Talks About NPD
$5 each - VHS or DVD

All logos are copyrighted or are registered trademarks of the respective company.

The National Niemann-Pick Disease Foundation does not endorse or warrant these companies and products. This page is presented for informational purposes only.

[November 18th, 2013 ~ blg]